Monday, September 17, 2012


Those first two weeks. So hard. Poop everywhere. Constantly.

Poor Noah was going to the bathroom literally every 30 minutes during the day, and up to a couple hours at night. Sleep? Never. Not for me, not for Noah and not for Mark. I at least got to nap during the day...Noah would wake himself up constantly, even if he had to pass gas. He was only getting maybe 6 hours a day of sleep. Poor baby! I can only imagine!

Newborn skin and 8 month old's poop don't mix well (diaper rash...) on top of constant pooping. And recovering from having clamps up your bum with stitches lining your rectum. And an open, gaping colostomy hole in your side. And 4 inch incision through your tummy. Poor baby. Life was rough for him! So as you can imagine, anytime he'd go, it was extremely painful. We made sure to follow his pain med schedule religiously...alternating Tylenol and Advil around the clock. After about 8 days post-hospital we didn't have to give him any more. Babies heal so fast--it's incredible.

We had my mom come for two days in a row to watch him while I slept, and then Mark's mom and grandma came two days after that. I don't know what I would have done without them!

We tried a lot of different cremes and pastes for his hiney. We have a system figured out now and so things are so much better! It just took awhile to get there, but we never let the rash get as bad as some of the cases that I've heard (bleeding sores, etc.). We rotate the stuff the hospital gave us, AD treatment creme, and this Resinol stuff that Mark's Grandma's friend used for her random! We just alternate those three and it has seemed to do the trick! After loading the creme/paste on, we douse it in medicated baby powder (not the super perfumey kind...I hear that's no bueno). That has helped SO MUCH!

He had his two week appointment on Thursday the 13th with his surgeon. Dr. Scaife stuck his finger up Noah's bum and told us that we don't have to do dilations!!!!!!!! HALLELUJAH! Seriously the biggest blessing. I have been stressing about how I'm going to get him to stay still while I put lubed-up rods up his bum every day. And now I don't have to do that. It's the biggest blessing ever.

He did however say that we needed to do rectal washes every day for a month, come see him, and get instructions from there. I was really nervous about those, but we have done them 4 times now and ever since we started those he has gone all night long without pooping! He has been waking up once every night to eat...we will work on that later though. We don't have the heart to re- sleep-train him after all he's been through. He won't sleep in his crib during the day so that's something he needs to get over! Since everything at the hospital he is extremely anxious when we aren't close by and is wary of strangers, especially if they're in scrubs! He's no dummy!

I'd be lying if I said that he's all good now and there's nothing but butterflies and rainbows ahead, but just the fact that the surgery worked, he is now bag-less, and was able to go home so quickly are all miracles in themselves! We have some great days, and some not-so-great days. Today is a not-so-great day. He ate something that really irritated his stomach and has been going to the bathroom every 20 minutes or so today. Because of the frequency, his diaper rash is looking pretty bad today. Those are things that we will learn and figure out along the way.

Thank you for all your continuous support! We are doing so much better than we were--that's progress!

1 comment:

  1. I can only imagine how hard this has been for your little family! You are such a patient mother. Here to praying that at your check-up next month everything is looking good!